Alexa on Instagram: "We finally have answers from Lydia’s epilepsy studies… and like most things on this journey, nothing came wrapped in a neat little bow. The doctors confirmed that she is having tiny little seizures throughout the day—just a few seconds long, so subtle they’re almost invisible unless you know her the way I do. But the curveball came when we learned she also has an exaggerated Moro reflex, a leftover effect of her brain injury. That reflex has been masking itself as seizure ac

Tilly Rose │ Chronic Illness on Instagram: "Doctors in the UK: we can’t find a physical diagnosis for your symptoms so it must all be in your head. ➡️ Cue sending in psychiatry… Doctor in Germany: you have multiple life threatening vascular compressions preventing blood flow to major organs🩸. It’s not all in your head, it’s all in your belly. ➡️ Follow @thattillyrose where in my insta captions I share ‘chapters’ on my journey to receiving my lifesaving and lifechanging diagnosis and everything